Via Our Mind Financial institution, the nonprofit she based, Ms. Morris inspired treating extra than simply the tumor.
“If you’re instantly advised that you’ve got a situation that’s thought-about terminal,” she mentioned on the podcast the Human Guinea Pig Challenge in 2019, “the one factor you desperately want is psychological assist, and it’s not there.”
She additionally wished to make sure that sufferers had entry to and funding for second opinions, in order that those that have been advised “nothing might be completed” by one physician may search out a extra aggressive method in the event that they selected. She herself pursued a number of novel approaches, her husband mentioned, together with an experimental remedy that one in all her docs had instructed, involving an injection of herpes virus into the tumor within the hope of stimulating a defensive response.
“Even when I don’t know precisely how explicit therapies may work — and no person actually does — it form of is smart to attempt to block as many pathways to the most cancers as attainable,” Ms. Morris defined on the podcast.
One other objective was making it simpler for glioblastoma sufferers to enroll in scientific trials of medicine and therapies. The method of stepping into such trials might be cumbersome and irritating to sufferers with a restricted life expectancy. And since glioblastoma is a posh illness through which every tumor has completely different traits, Ms. Morris and her group developed an app that sufferers can use to report signs and share info with each other and with medical professionals — as an assist to understanding the illness higher.
“Affected person symptom information is a largely untapped pool of data that may inform researchers, to allow them to higher design therapies,” Ms. Morris mentioned throughout a 2019 panel dialogue on patient-centric therapies. “Involving sufferers in that course of has the additional advantage of offering individuals with the illness to really feel they’re managing the illness, and never the opposite manner ’spherical.”
Jessica Jane Morris was born on July 22, 1963, in Greenwich, close to London. Her father, Invoice, was an architect, and her mom, Elizabeth (Villar) Morris, is an artist.